Subject: 10/02/02 Update from Kraig, Loren and Keren
Date: Wed, 02 Oct 2002 11:46:12 -0400
From: Kraig Warnemuende <ad6075@wayne.edu>
Dear all,
Today is a better day than yesterday. Actually yesterday improved greatly
once we got to the hospital and were able to be with Keren again. Just watching her breathe is an
encouragement--and she's been doing really well with that. We got to hold her again, too, and
we're always holding her hands when she's in the isolette. We also talk to her and sing to her a
lot. She's just so irresistible!
I think I mentioned in yesterday's email that there was a
couple in our church who had had a little girl with trisomy 18. Yesterday they came to visit us, and we
got to talk for a good hour or so.
What an encouragement!!! It
was so helpful to talk with a couple who had been through what we're facing,
and who had had almost three good years with their little girl. They gave us some great books to read
and some other resources, and I know they themselves will be invaluable. It's amazing to think that there are
two of us in our church who have had to face the same crisis--in some ways it
seems almost unfair that we are the second. Not only do we benefit from their knowledge, but our entire
church family is familiar with the syndrome. We came away from our talk with Dave and Linda with much
more confidence that we will be able to have Keren at home for a while.
Keren's doctors are also getting us all ready so that
Keren can come home--in fact, it may be by the end of this week! Kraig's been great about making sure we
aren't moving faster than we are prepared for; obviously there is so much we
don't know. But we are realizing,
too, that part of our fears are normal first-time parent fears, and the doctors
are sensitive to that, too, and so also firm. We know that home with us is the best place for Keren. One thing the doctors are setting up
for us is a day/night stay on the pediatric floor as kind of a "halfway
house." There we will be with
Keren and taking care of her completely, but nurses and doctors are available
if needed. We're really looking
forward to bringing Keren home, but it's scary, too. Please pray that we will
be wise in our decisions!!!
I think that's the scoop for now. We still will get photos to you--Kraig's
going to be setting up our website with photos soon, so that you can go view
them. We'll let you know when
that's up.
Thank you for all you continued prayer and
encouragement. It is SOOOO
helpful!!!
Much love,
Loren, for Kraig and Keren